Investigators

  • Professor Nathan Wilson (Western Sydney University)
  • Professor Ajesh George (Western Sydney University)
  • Dr Sam Arnold (Western Sydney University)
  • Lily Lewington (Western Sydney University)
  • Miss Kylie Scott (Western Sydney University)
  • Dr Archana Pradhan (University of Sydney)
  • Professor Linda-Slack-Smith (University of Western Australia)
  • Associate Professor Leonie Short (Senior Dental Care Australia)
  • Dr Phuong Nguyen (Deakin University)

 

  • Associate Professor Joanne Watson (Deakin University)
  • Professor Hanny Calache (La Trobe University)
  • Associate Professor Caoimhin Mac Giolla Phadraig (Trinity College Dublin)
  • Miss Inès Phlypo (Ghent University)
  • Dr Gisselle Gallego (The University of Notre Dame Australia)
  • Dr Amy Villarosa (Australian National University)
  • Dr Padma Gadiyar (Smilo.ai, Founder)
  • Mrs Eugenia Natalia Uthurralt (Centre for Oral Health Strategy, NSW Health)

Collaborators

Aruma
Greystanes Disability Services
NADO Disability and Aged Care
Northcott
North West Disability Services (NWDS)
Sylvanvale
Smilo.ai
Summerhill Media
Ministry of Health NSW

Project Overview

People with intellectual disability have poor oral health outcomes due to limited access to preventive oral health care. Reliance on others, such as paid disability support workers who are often poorly trained, means that their oral health care and support needs are often overlooked, and rarely addressed in research, policy and practice. This complex intervention will use co-creation principles to work in partnership with people with intellectual disability and their caregivers to develop, implement and evaluate Australia's first workforce model - a multi-media education and action resource - to advance preventive oral health care for people with intellectual disability. First, using an innovative, tested Artificial Intelligence enabled digital platform, the team will profile the oral health status of people with intellectual disability, to clearly understand the personal and service-context factors that predict different oral health outcomes. This will include an economic evaluation of how much 'business as usual' costs. These findings will inform the co-creation of an online holistic education and action resource for disability support workers that will be adaptable for people with diverse support and oral health needs.

Next, the resource will be implemented across the team’s disability service partners, with embedded process, impact and cost-benefit evaluation. Anticipated outcomes will include better oral health knowledge among people with intellectual disability and disability support workers, improved oral health practices, earlier identification of oral health problems, and appropriate referral to oral health services. Partnerships with disability services, government and peak bodies will ensure national access and sustainability of the resource. This project will lead to better preventative oral healthcare for people with intellectual disabilities, build workforce capacity and provide an accessible national oral health resource.

Aims & Objectives

This study aims to strengthen preventive oral healthcare capability within the disability workforce through a co-created, systems-based approach developed with people with intellectual disability and disability service providers.

This five-year project has four core objectives:

  • Understand the personal and contextual predictors of different oral health outcomes for people with intellectual disability using an Artificial Intelligence enabled digital platform (Smilo.ai), Modified Oral Status Survey Tool (MOSST, Byrne et al., 2025), and determine the oral health baseline and economic cost of ‘oral health business as usual’. [Phase 1]
  • Co-create a systems-based oral health education and action resource - the intervention. [Phase 2]
  • Conduct a formative evaluation, then implement the intervention across our 6 disability service partners (Aruma, Greystanes, NADO, Sylvanvale, Northcott, and NWDS). [Phase 3]
  • Conduct ‘disability system’ contextual process, cost-effectiveness and outcome evaluations. [Phase 4]

Milestones of the Project 

Be part of our study 

Arts-Based Workshop (Adults with Intellectual Disability)

If you are interested in participating in the Arts-Based Workshop for this study, please click here to view the project flyer. 

Lived Experience Advisory Group (Adults with Intellectual Disability)

If you are interested in participating in the Lived Experience Advisory Group for this study, please click here  to view the recruitment flyer. 

Lived Experience Advisory Group (Caregivers of Adults with Intellectual Disability)

If you are a caregiver or support worker interested in participating in the Lived Experience Advisory Group for this study, please click here to view the recruitment flyer. 

Adults with Intellectual Disability: In-person survey and oral health assessment (by appointment)

If you are interested in participating in a survey and oral health check for the study, please click here to view the project flyer. 

For more information about this project, please contact the Research Project Manager: Lily Lewington
Phone: (02) 4570 1756
Email: L.Lewington@westernsydney.edu.au

Research Output

To see the various outputs from the program, please navigate to the pages below:

Publications Presentations Awards Training resources Oral health promotion resources

Alignment with ACIOH’s themes


Workforce reoriented:

CARERS

This project aims to evaluate oral health training provided to carers of people with an intellectual or developmental disability.


People-centred strategies:

FOR PEOPLE WITH INTELLECTUAL OR DEVELOPMENTAL DISABILITIES

This project aims to improve the oral health of people with an intellectual or developmental disability